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07 May 2016 @ 12:15 pm
Kate's progress: April  
Not a lot to report this month, which is good.

Kate just had another MRI and it continues stable, so we have cranked the steroids down another notch. She is now taking 2mg/1mg on alternate days, down from 8mg a day all last year. With luck we will eventually be able to get her off of the steroids and their nasty side effects completely. There is still some aphasia, and memory and cognitive issues, but they vary a lot depending on time of day, energy level, and who she's talking to, so it's hard to say whether they are improving or staying the same. I think there's some improvement, but it's slow.

Her strength and balance continue to improve; she is now getting around using only a cane, and hasn't used the walker in over a month. She is now rated as an "independent community ambulator" by the physical therapist and has gone on a few walks by herself. Things are going well enough that she is now only seeing the PT every other week, and the naturopath every other month. As for me, I'm now on a "call me if you need to see me" schedule with my psychologist.

We haven't had any travel in the last month, but we did see some live theatre (I particularly enjoyed "The Pianist of Willesden Lane" and the lumberjack circus "Timber!"). May will be a busy month, though: we are going to Chicago next week for the Nebula Awards weekend and Book Expo America, then to Madison two weeks after that for Wiscon, followed by a few days in Milwaukee with my dad.

Thanks to Melissa, Teresa, Joyce, Geri, Will, Patty & Sean, John, Shannon, Chip & John, Karen, Robin & Dave, Bo & Don, Marti, Sara, and everyone else who came by for a walk or a visit or shared a meal.
 
 
 
Debbie N.wild_irises on May 7th, 2016 08:03 pm (UTC)
Pianist of Willesden Lane
I hope you saw The Pianist of Willesden Lane with the woman who created it; I remember thinking when I saw it that I didn't know if anyone else could do it at all, let alone do it justice. (So is it a play? Does a play have to be replicable with different actors to be a play?)

Anyway, I would not say I "enjoyed" it, but I was very very glad to have seen it.
David D. Levinedavidlevine on May 7th, 2016 08:04 pm (UTC)
Re: Pianist of Willesden Lane
It was, indeed, performed by the creator, and my feelings about it were similar to yours: that no one else could possibly do it, and that she was not so much an actor as a storyteller. But what a story!
martianmooncrab: pic#59898509martianmooncrab on May 8th, 2016 07:02 pm (UTC)
its always good to hear such positive news...

brains just take longer to heal...
Eli: wavespriteeub on May 9th, 2016 07:07 am (UTC)
Independent community ambulation! That calls for a party.